ESCAPE-pain is a rehabilitation programme for people with chronic joint pain, that integrates educational self-management and coping strategies with an exercise regimen individualised for each participant. It helps people understand their condition, teaches them simple things they can help themselves with, and takes them through a progressive exercise programme so they learn how to cope with pain better.
Osteoarthritis affects approximately 8 million people in the UK, and is becoming more common as we live longer. In collaboration with ESCAPE-pain we are running a series of physiotherapist-led sessions, taking place at the Sue Bramley Centre, Barking. This 12-session programme, twice a week for 6-weeks, for people over the age of 45 aims to:
- Enable them to manage their joint pain, helping them to carry out normal activities without fearing pain
- Help them to appreciate the benefits of simple exercise, encouraging them to become active and independent
- Provide them with the skills and suggest ways that they may manage their symptoms more effectively
- Work with them to plan their activities and set goals they can achieve through exercise
- Provide a fun, group-based activity to allow people suffering from joint pain to discuss and overcome their issues together!
PARTICIPANT INFORMATION – PRIVACY NOTICE
Your personal data will be treated as strictly confidential. The processing of personal data is governed by the Data Protection Act 2018 (DPA) and the General Data Protection Regulations 2018 (GDPR).
What data we need:
To run the Escape Pain course, Care City will collect personal data on all attendees. This will include your name, date of birth, address, emergency contact details and details of your GP practice as well as any relevant medical history.
Why we need it:
We need to know your personal data and medical history in order for the clinician running the course to monitor you safely during the programme and for the team to be able to keep in touch with you during the programme. We also want to understand the impact of the Escape Pain course on our attendees and to know if it makes a difference to your pain, movement and function.
What we do with it:
The participant forms will be stored securely in the Care City office, and only accessed by the Escape Pain programme team. We will not share your data with anyone else, unless requested by yourself. However, if you become unwell or a medical emergency arises during the course, your medical history may be shared with other health professionals.
Any data used to evaluate the impact of the course will be anonymised. As a programme hosted by North East London Foundation Trust, Care City has a robust Data Protection regime in place to oversee the effective and secure processing of your personal data. More details on this can be provided if requested.
How long we keep it:
We will store your data for 24 months from the end of the Escape Pain course.
What we would also like to do with your data:
We would like to use your name, telephone number and email address to inform you of any relevant future programmes and opportunities (for example similar exercise programmes, social groups etc.) which may be of interest to you. This information will not be shared with third parties.
If at any point you would like to withdraw your personal details, please inform the course organisers and these be securely destroyed.
Your rights and personal data
You have the following rights with respect to your personal data:
- The right to access information we hold on you
- The right to correct and update the information we hold on you
- The right to have your information erased
- The right to object to processing of your data
- The right to data portability
- The right to withdraw your consent at any time for any processing of data to which consent was sought.
- The right to object to the processing of personal data
- The right to lodge a complaint with the Information Commissioner’s Office
Please contact us if you have any questions about this General Privacy Notice, the information we hold about you or if you would like to exercise relevant rights or have a query or complaint.
You can contact the Information Commissioner’s Office on 0303 123 1113, via their website www.ico.org.uk or by post; Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF